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 I am writing to ask you all to stand with us. For those of you that don’t know, our daughter Vivia has been battling a serious illness since she was 5 years old. It is an extremely rare, life-threatening disease that only effects 1 in one million children. She achieved remission a year ago (after […]
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 This weekend as our family returned from the best trip of our life to CO, UT, WY, and SD National Parks tour – we decided to go to the beach on Saturday for a little respite from our severe case of “Take Me Back”. As you all know, beach days for our family are much […]  In one door, out the other. Just as we are catching a breather and celebrating and reveling in Vivia’s remission (after a LONG 7 years journey see VIVIA’s STORY), it seems we are about to embark on another unexpected (although not nearly as horrific) venture. Rio’s specialist appointment earlier this month discovered another related birth-defect […]  As I pick up the ancient volume (that is my beloved personal blog) and blow the dust off her cover, I open the thick book with nostalgia, care, and excitement as if visiting an old friend I haven’t seen in a long long time. I am visiting to have a look back, but also to begin […]  Recently, my family and I flew from Orlando, Florida to Sydney, Australia. My daughter was gifted this trip by the amazing organization Make a Wish Foundation who grants wishes to kids with life-threatening illnesses. Read more about her story HERE. Although I knew this would be a trip of a lifetime, I was really stressed out in the days […]
April 8, 2015 - 10:14 am
First, you have such a beautiful family! I am traveling with my daughter, who has special needs, and my husband in a few months for 17 hrs from Orlando to Alaska. Thank you for the wonderful tips. I’ve been struggling to find activities that will occupy my daughter’s attention and keep her calm. I hadn’t thought about bringing a bag for trash or packing a whole snack box, so thank you! My daughter is big into painting, but that’s not going to happen on a plane, so I’ve been stocking up on some color magic coloring pages and special markers. I’ve also been looking at wiki stix, which are made in the USA and are non-toxic. Thanks again for sharing your story!  This is from a new project I started with some fellow moms of Kids with Chronic Conditions: You can find it here: www.FastBreak40.com It’s a project I am passionate about and have had in my heart since we first began to breathe after Vivia’s diagnosis. If you have a child with a Chronic Condition, Birth […]  Vivia was chosen to attend Camp Boggy Creek this summer – she’s (as I write) packing her bags to arrive tomorrow. This place is something else. TO say it is special is a huge understatement. We went for one weekend for one of their family retreats back in April – so we got to experience it […]  This year for Father’s Day, I wanted to do something really creative for my babydaddy husband. After hours and hours of scouring Pinterest and finding loads of good ideas (click here to see my Father’s Day Pinterest Board I put together for my Lovely Project article I am writing…) I still decided to branch out […]  So, here we are at the two year mark with Vivia being treated for JDM. Here she is a couple of weeks ago. So grown up. Life as we knew it ceases to exist. We have a new life with new foods, new routines, new habits, new heartaches, and new “normals”. Vivia continues to […]
May 14, 2013 - 9:56 pm
You are such a warrior, Free. I love you for your courage, your faith and your unrelenting love for Vivs. My family stands with you in hopes that healing is closer now than it has ever been, and knowing that our Father has a firm grip on everything concerning your sweet family. You and Vivia have our prayers. You are loved.
May 14, 2013 - 10:02 pm
Would love to hang with you guys indoors sometime! Vivia is full of life and promise. God is good, and we will be praying for complete healing. Love you guys!
May 15, 2013 - 12:42 am
Beautiful Freedom, just beautiful. I had no idea the severity or really any details of her condition. I pray for her, she is such a ray a sunshine who needs it <3 The pic up top is gorgeous, God bless u guys!! If there's anything I can do to help please just let us know 🙂
June 27, 2013 - 5:44 am
I don’t normally pray for overcast weather and rain especially since we have had more than our fair share here this year, but I am praying that, whatever it takes, your time in Aus is a blessing to you and your family and that KidsSong is all Vivia has dreamt of.
July 13, 2013 - 2:09 am
I have a sweet friend in her twenties who was diagnosed with Lupus when she was a child. With her mom’s (and others’) prayer and fasting, she has been ‘in remission’ since she was a little girl. God is good.
July 27, 2013 - 7:40 pm
Hi freedom,
August 19, 2014 - 5:24 pm
I was reading about the colostrum….did that seem to help her at all? Im another JDM mom.  The US Social Security Administration just released their list of most popular baby names from 2012- Click on any of the names below to see what they mean on Parents Magazine’s website’s Baby Name Finder. BOYS Jacob Mason Ethan Noah William Liam Jayden Michael Alexander Aiden GIRLS Sophia Emma Isabella Olivia Ava Emily Abigail Mia […] |
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