Comments on: My New Normal… a trip to the Ocularist http://andbabymakes4.com/?p=428 Our little family's realization, that there is no normal Tue, 28 Feb 2012 23:22:33 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: freedomg12 http://andbabymakes4.com/?p=428#comment-1634 freedomg12 Sat, 18 Feb 2012 15:58:40 +0000 http://www.andbabymakes4.com/?p=428#comment-1634 I am so glad, Lidsis! That is why I did it. I needed to see. Even though I speak English, when the doctors told us, they may have well have been speaking a different language, because we didn't understand! Where are you guys from? I am so glad, Lidsis! That is why I did it. I needed to see. Even though I speak English, when the doctors told us, they may have well have been speaking a different language, because we didn’t understand! Where are you guys from?

]]> By: Lidisis Achang Rivas http://andbabymakes4.com/?p=428#comment-1379 Lidisis Achang Rivas Wed, 07 Dec 2011 17:18:47 +0000 http://www.andbabymakes4.com/?p=428#comment-1379 Maybe you don't know that you helped people who the first language is not english and even when I found your blog and your story and I read your simple but incredible words I felt so happy, I looked to my 3 months daughter and I thought "everything is going to be ok". Thanks. Maybe you don’t know that you helped people who the first language is not english and even when I found your blog and your story and I read your simple but incredible words I felt so happy, I looked to my 3 months daughter and I thought “everything is going to be ok”. Thanks.

]]> By: Robin http://andbabymakes4.com/?p=428#comment-578 Robin Mon, 14 Mar 2011 05:28:02 +0000 http://www.andbabymakes4.com/?p=428#comment-578 Hi there. Some of the pictures aren't uploading & I wanted to show our ocularist the picture of rio's shell with the holes drilled in it so the eye can still get oxygen. My LO Asa (1 year) also has micro eye & we are working with his first shell/conformer Hi there. Some of the pictures aren’t uploading & I wanted to show our ocularist the picture of rio’s shell with the holes drilled in it so the eye can still get oxygen. My LO Asa (1 year) also has micro eye & we are working with his first shell/conformer

]]> By: Heather http://andbabymakes4.com/?p=428#comment-577 Heather Sun, 14 Nov 2010 04:53:50 +0000 http://www.andbabymakes4.com/?p=428#comment-577 I have stumbled upon your blog when searching the conditions; Micropthalmia and Anaplthalmia. I am a nanny for the sweetest set of twins you could ask to meet. The little boy has these conditions and I had never heard of them before meeting with his family. Your blog has help me understand more what the family has been through before I came to know them. Thank you very much, as there are not many personal accounts out there; all just technical mumbo-jumbo. So thank you very much. Have a great day and the best of luck to all of you. -H- I have stumbled upon your blog when searching the conditions; Micropthalmia and Anaplthalmia.
I am a nanny for the sweetest set of twins you could ask to meet. The little boy has these conditions and I had never heard of them before meeting with his family. Your blog has help me understand more what the family has been through before I came to know them.
Thank you very much, as there are not many personal accounts out there; all just technical mumbo-jumbo.
So thank you very much. Have a great day and the best of luck to all of you.

-H-

]]> By: Janice Anderson http://andbabymakes4.com/?p=428#comment-576 Janice Anderson Thu, 23 Sep 2010 04:42:06 +0000 http://www.andbabymakes4.com/?p=428#comment-576 Wow! Thank you so much. My son who is now 4 weeks old has micro of his left eye. Like others my husband and I were totally blown away by this diagnosis. What did this mean? Could he see? Would he be normal? Thankfully we have recieved good support and good information and are learning more each day. He will be seeing the ocularist on October 18 and will be getting fitted for a conformer soon. God Bless each and every one of you. Thank you for the wonderful information and the sharing of your stories. Wow! Thank you so much. My son who is now 4 weeks old has micro of his left eye. Like others my husband and I were totally blown away by this diagnosis. What did this mean? Could he see? Would he be normal? Thankfully we have recieved good support and good information and are learning more each day. He will be seeing the ocularist on October 18 and will be getting fitted for a conformer soon. God Bless each and every one of you. Thank you for the wonderful information and the sharing of your stories.

]]> By: Barry http://andbabymakes4.com/?p=428#comment-575 Barry Fri, 10 Sep 2010 22:41:33 +0000 http://www.andbabymakes4.com/?p=428#comment-575 I wanted to thank you for your website. My sister-in-law saw your website and has taken a little comfort in it. I just wanted to let you know that you helped someone else feel a little better. Their youngest son is starting to go through this now. Thank you for being open and caring. I wanted to thank you for your website. My sister-in-law saw your website and has taken a little comfort in it. I just wanted to let you know that you helped someone else feel a little better. Their youngest son is starting to go through this now. Thank you for being open and caring.

]]> By: Karen http://andbabymakes4.com/?p=428#comment-574 Karen Thu, 09 Sep 2010 22:18:58 +0000 http://www.andbabymakes4.com/?p=428#comment-574 Thank you so much for sharing the story of your beautiful baby boy. Our 5 month old grandson is being fitted for his first conformer tomorrow. We can olny be there in prayer and will be anxious to talk to our son tomorrow afternoon. You have helped us understand the process so much better. Thank you so much for sharing the story of your beautiful baby boy. Our 5 month old grandson is being fitted for his first conformer tomorrow. We can olny be there in prayer and will be anxious to talk to our son tomorrow afternoon. You have helped us understand the process so much better.

]]> By: Rena http://andbabymakes4.com/?p=428#comment-573 Rena Thu, 09 Sep 2010 17:29:15 +0000 http://www.andbabymakes4.com/?p=428#comment-573 THANKS! I sat and held my son Titus and cried while I read through your blog and viewed your photo tour. Titus also has microphalmia. Tomorrow we are headed to an ocularist to be fitted for his conformer. It was good to have a heads up, to see and read what to expect from another mom. Titus is 4 months old now and like you this was not a journey I ever dreamed we'd be on! I found solice in John 9:1 -As he (Jesus) went along, he saw a man blind from birth. His disciples asked him, "Rabbi, who sinned, this man or his parents, that he was born blind?" 'Neither this man nor his parents sinned," said Jesus, "but this happened so that the work of God might be displayed in his life."- And so my husband and I pray that through this He would use Titus to display the work of God in his life. Thank you so much for you blog and the encourgement I found from reading it! Rena THANKS! I sat and held my son Titus and cried while I read through your blog and viewed your photo tour. Titus also has microphalmia. Tomorrow we are headed to an ocularist to be fitted for his conformer. It was good to have a heads up, to see and read what to expect from another mom. Titus is 4 months old now and like you this was not a journey I ever dreamed we’d be on!
I found solice in John 9:1
-As he (Jesus) went along, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”
‘Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.”-
And so my husband and I pray that through this He would use Titus to display the work of God in his life.
Thank you so much for you blog and the encourgement I found from reading it!
Rena

]]> By: Heather http://andbabymakes4.com/?p=428#comment-572 Heather Tue, 17 Aug 2010 01:49:14 +0000 http://www.andbabymakes4.com/?p=428#comment-572 Oh my, I am soooo glad to have read your photo blog! Thank you, thank you! My son Orion is 4 weeks old and I'm not sure which is it he has bilaterally- anophthalmia or micropthalmia. I have been wanting to find out when it is time, when is it too late to 'comfortably' start using prosthesis. Nice photography, too. :::Heather Oh my, I am soooo glad to have read your photo blog! Thank you, thank you! My son Orion is 4 weeks old and I’m not sure which is it he has bilaterally- anophthalmia or micropthalmia. I have been wanting to find out when it is time, when is it too late to ‘comfortably’ start using prosthesis. Nice photography, too. :::Heather

]]> By: Ana http://andbabymakes4.com/?p=428#comment-571 Ana Sat, 24 Jul 2010 04:54:36 +0000 http://www.andbabymakes4.com/?p=428#comment-571 Hi Freedom: My name is Ana, and I am from Guatemala City. I have been alone in this journey with my husband. We have a beautiful baby Adriana of 9 months old. She has a Microphtalmia on her left eye. No one in Guatemala, not even the doctors have a had a case like this, so we went to the BAscom Palmer on January. We are doing the same thing as Rio at Miami, but since we live so far away, we go to Miami every 6 months to change his conformer. It´s great to hear your story and hear someone from the first time, is like a light to me. At the BAscom Palmer they said the same about the bones growing properly and the poor sight she would have, so your story is like hearing mine.She has had a great develop, she even sit and did many things before my oldest girl. Do you think we should visit a genetic Doctor and when? is this hereditary? no one in our family has had a Microphtalmic eye. How is Rio doing? can he see with the other eye? Thank you so much for your time!!!!! and help!!!!! Hi Freedom: My name is Ana, and I am from Guatemala City. I have been alone in this journey with my husband. We have a beautiful baby Adriana of 9 months old. She has a Microphtalmia on her left eye. No one in Guatemala, not even the doctors have a had a case like this, so we went to the BAscom Palmer on January. We are doing the same thing as Rio at Miami, but since we live so far away, we go to Miami every 6 months to change his conformer. It´s great to hear your story and hear someone from the first time, is like a light to me. At the BAscom Palmer they said the same about the bones growing properly and the poor sight she would have, so your story is like hearing mine.She has had a great develop, she even sit and did many things before my oldest girl. Do you think we should visit a genetic Doctor and when? is this hereditary? no one in our family has had a Microphtalmic eye. How is Rio doing? can he see with the other eye? Thank you so much for your time!!!!! and help!!!!!

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