Our New Normal [s] » Our little family's realization, that there is no normal

another “New Normal”

My emotions are too raw to really write about this.   But I do want to put this out there so that I can know our friends and family can be praying  for us.

I honestly can’t believe this is happening, and I am trying to process it all.

I debated with myself as to if I should post this or not, but I do want to begin documenting for the sake of things to come.

Our beautiful Vivia is in the process of being diagnosed with this:

Still processing.

February 14, 2011 - 7:27 am

Kristy Chowning - A friend of mine’s son was just diagnosed this just a couple of weeks ago. Before that, I had never heard of it. We will definitely be praying.

February 15, 2011 - 10:20 pm

Freedom - Thanks Kristy. That’s so odd. How old is your friend’s son? How far along is the disease? I mean, what are his symptoms, do you know?

February 15, 2011 - 10:49 pm

Heather Davis - I will be praying for you and your family Freedom. It’s always scary when the unexpected happens and especially when we don’t understand it. Know that God places it all in front of us for a reason, even though we can’t see it yet and it seems so unfair. I’m truly sorry you have to go through this hardship and I know it hurts the most when it’s our children. WHY CAN’T it BE US???? Love you and thinking of you.

February 15, 2011 - 11:40 pm

Naomi - you are in my thoughts constantly, I pray there is relief for your Vivia..soon! i love you!!!!

February 16, 2011 - 5:30 am

Miranda - Oh Free. I am so sorry, babe. You will be in my prayers. Love you.

February 17, 2011 - 10:38 pm

Kristy Chowning - I don’t know the details but I will see if I can connect the two of you.

February 23, 2011 - 1:05 pm

So, here it is… » And Baby Makes Four - […] If you want to find out about it more, you can go here: http://curejm.com/ This is the site I have found with the most up-to-date information. There is also a short video that does an excellent job of explaining what we are facing. You can also view it on my blog here: […]

July 7, 2011 - 10:18 am

ejackson - Freedom. I finally went and searched for this post because i saw your post from today… and remembered you said something about viv on an eliot post… I don’t know how I missed this except maybe you weren’t in my facebook feed (why does facebook make these decisions for us!) I’m so sorry I did not know. I will be praying and so sorry you are having to battle this.

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