Our New Normal [s] » Our little family's realization, that there is no normal

Category Archives: autoimmune disease

“Must Know” before you Go, Tips for Flying With Kids: Do’s and Dont’s

Recently, my family and I flew from Orlando, Florida to Sydney, Australia. My daughter was gifted this trip by the amazing organization Make a Wish Foundation who grants wishes to kids with life-threatening illnesses. Read more about her story HERE. Although I knew this would be a trip of a lifetime, I was really stressed out in the days […]

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Hear From Him

This is from a new project I started with some fellow moms of Kids with Chronic Conditions: You can find it here: www.FastBreak40.com It’s a project I am passionate about and have had in my heart since we first began to breathe after Vivia’s diagnosis. If you have a child with a Chronic Condition, Birth […]

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A WHOLE WEEK of Normal!!!

Vivia was chosen to attend Camp Boggy Creek this summer – she’s (as I write) packing her bags to arrive tomorrow. This place is something else. TO say it is special is a huge understatement. We went for one weekend for one of their family retreats back in April – so we got to experience it […]

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The Latest – sunshine, flares, and bovine colostrum

So, here we are at the two year mark with Vivia being treated for JDM.  Here she is a couple of weeks ago. So grown up.   Life as we knew it ceases to exist. We have a new life with new foods, new routines, new habits, new heartaches, and new “normals”. Vivia continues to […]

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My personal story of dealing with JDM.

Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom) journey with JDM has posted this morning on a blog called The Lovely Project. It would be awesome if the website was flooded with other moms piping (commenting/sharing) in about their experiences and […]

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