Our New Normal [s] » Our little family's realization, that there is no normal

Category Archives: autoimmune disease

“Must Know” before you Go, Tips for Flying With Kids: Do’s and Dont’s

Recently, my family and I flew from Orlando, Florida to Sydney, Australia. My daughter was gifted this trip by the amazing organization Make a Wish Foundation who grants wishes to kids with life-threatening illnesses. Read more about her story HERE. Although I knew this would be a trip of a lifetime, I was really stressed out in the days […]

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Hear From Him

This is from a new project I started with some fellow moms of Kids with Chronic Conditions: You can find it here: www.FastBreak40.com It’s a project I am passionate about and have had in my heart since we first began to breathe after Vivia’s diagnosis. If you have a child with a Chronic Condition, Birth […]

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A WHOLE WEEK of Normal!!!

Vivia was chosen to attend Camp Boggy Creek this summer – she’s (as I write) packing her bags to arrive tomorrow. This place is something else. TO say it is special is a huge understatement. We went for one weekend for one of their family retreats back in April – so we got to experience it […]

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The Latest – sunshine, flares, and bovine colostrum

So, here we are at the two year mark with Vivia being treated for JDM.  Here she is a couple of weeks ago. So grown up.   Life as we knew it ceases to exist. We have a new life with new foods, new routines, new habits, new heartaches, and new “normals”. Vivia continues to […]

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My personal story of dealing with JDM.

Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom) journey with JDM has posted this morning on a blog called The Lovely Project. It would be awesome if the website was flooded with other moms piping (commenting/sharing) in about their experiences and […]

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One Year…

Hard to process that it’s been one year already. We definitely have another “New Normal”, and although Vivia is doing amazingly well, as we head into the Florida Spring, we know we are far from being in the clear. We continue to Thank God for Vivia’s healing everyday, knowing this is part of walking it […]

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