Our New Normal [s] » Our little family's realization, that there is no normal

Category Archives: dermatomyositis

“Must Know” before you Go, Tips for Flying With Kids: Do’s and Dont’s

Recently, my family and I flew from Orlando, Florida to Sydney, Australia. My daughter was gifted this trip by the amazing organization Make a Wish Foundation who grants wishes to kids with life-threatening illnesses. Read more about her story HERE. Although I knew this would be a trip of a lifetime, I was really stressed out in the days […]

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The Latest – sunshine, flares, and bovine colostrum

So, here we are at the two year mark with Vivia being treated for JDM.  Here she is a couple of weeks ago. So grown up.   Life as we knew it ceases to exist. We have a new life with new foods, new routines, new habits, new heartaches, and new “normals”. Vivia continues to […]

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My personal story of dealing with JDM.

Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom) journey with JDM has posted this morning on a blog called The Lovely Project. It would be awesome if the website was flooded with other moms piping (commenting/sharing) in about their experiences and […]

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One Year…

Hard to process that it’s been one year already. We definitely have another “New Normal”, and although Vivia is doing amazingly well, as we head into the Florida Spring, we know we are far from being in the clear. We continue to Thank God for Vivia’s healing everyday, knowing this is part of walking it […]

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Alternative Protection to Cold and Flu season… what do we do, Part ONE

(Click Photo above to read more about THIEVES:) OUR STORY: I don’t have a whole lot of time to write this morning so I am going to be very brief: Here’s one main thing we do to prepare for Cold and Flu Season: Medical grade, THIEVES essential oil blend. We use it as an anti-bacterial rub, […]

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