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Category Archives: Juvenile Dermatomyositis
The Latest – sunshine, flares, and bovine colostrum
So, here we are at the two year mark with Vivia being treated for JDM. Here she is a couple of weeks ago. So grown upView full post »
My personal story of dealing with JDM.
Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom)View full post »
45 minutes of “normal”
A couple of weeks ago we were invited to stay at a friend’s condo at a nearby beach. When you have a child withView full post »
The Warrior
a thousand words, people. a thousand words.View full post »
This song stopped me in my tracks today
Since words cannot describe how this song made me feel, Just listen to it yourself. It’s like this guy read myView full post »
Vivia’s Wish…
We met with our Wish Granters last night. They came over our house, bearing gifts for Vivia, and we had a fantasticView full post »
Vivia in the Studio!
Here are some Pix from Vivia’s evening in the studio! I will post video later, of her precious little singing! WeView full post »
One Year…
Hard to process that it’s been one year already. We definitely have another “New Normal”, and althoughView full post »
Alternative Protection to Cold and Flu season… what do we do, Part ONE
(Click Photo above to read more about THIEVES:) OUR STORY: I don’t have a whole lot of time to write this morningView full post »
What We Do~ Works!
This is an excerpt from a recent post on a thread I put on the JDM support page on Facebook. Since this is my ownView full post »
I couldn’t have said it better…
“We’re not necessarily doubting that God will do the best for us; we are wondering how painful the best will turnView full post »
Share the Burden
So many of our friends and family have offered to help and asked how, and I thank you all so much. With much thought andView full post »
A Day in The Rain
Today the sun barely made an appearance. Rio says. ” I pway, rain”. I say “ok!”. And just likeView full post »
Remembering…
This is Vivia and what she looked like one week before being DX. It was 5 months ago, this week.View full post »
Aqua Therapy
Vivia has over the course of a week, grown gills and morphed into a little fish. I am absolutely thrilled as this typeView full post »
