We met with our Wish Granters last night. They came over our house, bearing gifts for Vivia, and we had a fantastic visit with Allan and Susie. Vivia has come up with 4 wishes,and now we have to figure out which one she wants the most. We are a family that loves to travel, and […]
Category Archives: Juvenile Dermatomyositis
Hard to process that it’s been one year already. We definitely have another “New Normal”, and although Vivia is doing amazingly well, as we head into the Florida Spring, we know we are far from being in the clear. We continue to Thank God for Vivia’s healing everyday, knowing this is part of walking it […]
(Click Photo above to read more about THIEVES:) OUR STORY: I don’t have a whole lot of time to write this morning so I am going to be very brief: Here’s one main thing we do to prepare for Cold and Flu Season: Medical grade, THIEVES essential oil blend. We use it as an anti-bacterial rub, […]
This is an excerpt from a recent post on a thread I put on the JDM support page on Facebook. Since this is my own private blog, I feel free to elaborate more, here in my own space. “I have been waiting for the right moment to talk about this on here, because I know […]
So many of our friends and family have offered to help and asked how, and I thank you all so much. With much thought and consideration and (humility) I have put together this list of things I have thought of. First of all: Please join us in prayer for believing for these specific things for […]
Today the sun barely made an appearance. Rio says. ” I pway, rain”. I say “ok!”. And just like that, magic happened. She got to feel like a kid today. I love this shot. On another note, Rio was fitted for glasses today. But not before licking the bottom of his bowl of yogurt.
Vivia has over the course of a week, grown gills and morphed into a little fish. I am absolutely thrilled as this type of exercise is the BEST for her. The majority of muscle weakness that the JDM has presented in her body is in her shoulders, and her neck. When she’s in the water, obviously, […]