Our New Normal [s] » Our little family's realization, that there is no normal

Category Archives: micropthalmia

NEW(s) – Summer Update 2017

In one door, out the other. Just as we are catching a breather and celebrating and reveling in Vivia’s remission (after a LONG 7 years journey see VIVIA’s STORY), it seems we are about to embark on another unexpected (although not nearly as horrific) venture. Rio’s specialist appointment earlier this month discovered another related birth-defect […]

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My personal story of dealing with JDM.

Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom) journey with JDM has posted this morning on a blog called The Lovely Project. It would be awesome if the website was flooded with other moms piping (commenting/sharing) in about their experiences and […]

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Trip to Holland

I didn’t write this, but I had to share because I have never come across something that describes our experience better than this. In case you were wondering… it’s short, and lovely. “I am often asked to describe the experience of raising a child with a disability – to try to help people who have […]

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Rio’s Story pt. 3

This is not  . Or doctored. This is Rio, 2 hours into wearing his new “diggs”. He recieved his Scaleral Shell aka. (Prosthetic Eye) today. I am still trying to figure out how I feel about seeing my son like this. I need a little time to process it. He’s gorgeous. As he was before. […]

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My New Normal… a trip to the Ocularist

When my son was diagnosed with Microphthalmia, I felt my world come crashing down,  fear and grief flooded in. I was exposed. My prior feelings of invincibility forever washed away by one word I had never heard before, but would grow to know all too well.  Micro meaning little, ophthalmos meaning eye. “Little Eye.” What is […]

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Photo Shoot with Rio

It has been so long since I have posted, I have quite a bit to put on here… I have literally been slammed with work (but I am NOT complaining!)… This one is called “Fun with Desiree’s camera since I still don’t have my own.” *pout* Hey, Mother’s Day is coming up, right??? Rio hit […]

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Silly moments…

This, a blog entry for family that is abroad, to update them. Everyone else, can just gawk at my gorgeous family and kids. Rio has his second conformer in. The Ocularist says that in a couple of months, he thinks we can begin the process of making a custom one for him that has “art” […]

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