Our New Normal [s] » Our little family's realization, that there is no normal

Category Archives: update

Yet another normal…

When Gabriel and I set out to start a family, like most couples, we had no idea what we were getting into. After having two children with extremely rare conditions, (one being life-threatening), I had pretty much decided I was done having kids. I would say things like, “Let’s get at least one out of […]

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One Year…

Hard to process that it’s been one year already. We definitely have another “New Normal”, and although Vivia is doing amazingly well, as we head into the Florida Spring, we know we are far from being in the clear. We continue to Thank God for Vivia’s healing everyday, knowing this is part of walking it […]

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Share the Burden

So many of our friends and family have offered to help and asked how, and I thank you all so much. With much thought and consideration and (humility) I  have put together this list of things I have thought of. First of all: Please join us in prayer for believing for these specific things for […]

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Trip to Holland

I didn’t write this, but I had to share because I have never come across something that describes our experience better than this. In case you were wondering… it’s short, and lovely. “I am often asked to describe the experience of raising a child with a disability – to try to help people who have […]

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I’m still here…

Well, after a 9  month or so hiatus, I am back. I finally have a little bit of time on my hands to begin blogging again. The world is such a different place already in these short months. Just wanted to say hello and then, I will begin posting about some stuff we have done […]

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Rio’s Story pt. 3

This is not  . Or doctored. This is Rio, 2 hours into wearing his new “diggs”. He recieved his Scaleral Shell aka. (Prosthetic Eye) today. I am still trying to figure out how I feel about seeing my son like this. I need a little time to process it. He’s gorgeous. As he was before. […]

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