Our New Normal [s] » Our little family's realization, that there is no normal

sadness

It comes and goes in waves. Like her moods. I WILL NOT lose her to this friggin disease. She will not be taken from us for 6 months, 6 days, or even 6 minutes! Can’t I just take her in my arms, and hold her and not let go until this is all over?

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I never thought…

I’d see the day that taking Rio to his monthly Ocularist appointment would ever take a back-burner to anything else! This morning, I called them and told them I couldn’t make it, which is the first time I have ever done that in his 2 years of going there. I sit here as one who […]

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February 16, 2011 - 6:14 pm

Jill Owens - What a BEAUTY!!!!! She is in God’s hands ” THE ULTIMATE HEALER ” : ) Lot’s of love and prayers to you and the family! God has Vivia cuddled up in his arms! xo Jill

The Latest

We have an appointment tomorrow with a homeopathic doc who will examine Vivia’s levels and her diet and make some dietary suggestions based on her diagnosis. And we will become one of “those” families who can’t eat out or has to bring their own treats to parties bc we can’t eat anything commercial. But, hey, […]

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another “New Normal”

My emotions are too raw to really write about this.   But I do want to put this out there so that I can know our friends and family can be praying  for us. I honestly can’t believe this is happening, and I am trying to process it all. I debated with myself as to […]

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February 14, 2011 - 7:27 am

Kristy Chowning - A friend of mine’s son was just diagnosed this just a couple of weeks ago. Before that, I had never heard of it. We will definitely be praying.

February 15, 2011 - 10:20 pm

Freedom - Thanks Kristy. That’s so odd. How old is your friend’s son? How far along is the disease? I mean, what are his symptoms, do you know?

February 15, 2011 - 10:49 pm

Heather Davis - I will be praying for you and your family Freedom. It’s always scary when the unexpected happens and especially when we don’t understand it. Know that God places it all in front of us for a reason, even though we can’t see it yet and it seems so unfair. I’m truly sorry you have to go through this hardship and I know it hurts the most when it’s our children. WHY CAN’T it BE US???? Love you and thinking of you.

February 15, 2011 - 11:40 pm

Naomi - you are in my thoughts constantly, I pray there is relief for your Vivia..soon! i love you!!!!

February 16, 2011 - 5:30 am

Miranda - Oh Free. I am so sorry, babe. You will be in my prayers. Love you.

February 17, 2011 - 10:38 pm

Kristy Chowning - I don’t know the details but I will see if I can connect the two of you.

February 23, 2011 - 1:05 pm

So, here it is… » And Baby Makes Four - […] If you want to find out about it more, you can go here: http://curejm.com/ This is the site I have found with the most up-to-date information. There is also a short video that does an excellent job of explaining what we are facing. You can also view it on my blog here: […]

July 7, 2011 - 10:18 am

ejackson - Freedom. I finally went and searched for this post because i saw your post from today… and remembered you said something about viv on an eliot post… I don’t know how I missed this except maybe you weren’t in my facebook feed (why does facebook make these decisions for us!) I’m so sorry I did not know. I will be praying and so sorry you are having to battle this.

Salmon Latino vs WILD

Chivalry is not dead. My MAN Gabe braved the WILDs of foot traffic, possible humiliation, and utter rejection to face Bear Grylls a

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February 11, 2011 - 6:31 pm

Luci W. - Hahahaha i really loved reading the Bear Grylls story. Especially that your husband took that chance and was able to surprise you. Years ago, I met Tim Curry when I worked at a bar and I couldn’t remember a single movie he’d been in, (or his name) but I knew that I loved every single character he played because he’s great in every role. I greeted Tim with an ethusiastic, “It’s YOU!!!” and “it’s so wonderful to see you!” He was a great customer… gracious, funny, ordered big and tipped very well, etc.

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