Our New Normal [s] » Our little family's realization, that there is no normal

Tag Archives: chronic illness

Faith in Action: Guest Blogger Kim Poston Miller

It’s pretty easy to be a “good” Christian when things are going well. It’s easy to trust in God, have hope and faith when life is running on the smooth side.  I mean, why wouldn’t you feel great and comfy when everything is hunky-dory? That is were we were about 5 years ago. My husband […]

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The thing about Fear: well… 5 things.

Before we move on to other things, I wanted to talk about the elephant in the room – FEAR. We’ve all felt it. The moment we see a tiny red mark on our child’s cheek, or they say, “My arm hurts” or “Im tired”- those of us with children conquering chronic life-threatening illnesses know that […]

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Day 12: Make a W.I.S.H. – the power of our words, part 1

Day 12: Make a W.I.S.H. – the power of our words, part 1 Good morning fellow Extraordinary Mummies and Daddies, Caregivers and Friends! Today, during this week of Promise, is a day I want you to write down in your calendar. Because your life is going to change- starting today! I know that the day I […]

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Hear From Him

This is from a new project I started with some fellow moms of Kids with Chronic Conditions: You can find it here: www.FastBreak40.com It’s a project I am passionate about and have had in my heart since we first began to breathe after Vivia’s diagnosis. If you have a child with a Chronic Condition, Birth […]

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A WHOLE WEEK of Normal!!!

Vivia was chosen to attend Camp Boggy Creek this summer – she’s (as I write) packing her bags to arrive tomorrow. This place is something else. TO say it is special is a huge understatement. We went for one weekend for one of their family retreats back in April – so we got to experience it […]

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My personal story of dealing with JDM.

Good morning, beautiful families! I wanted to share, real quick that a story I wrote about our (mostly my, as her mom) journey with JDM has posted this morning on a blog called The Lovely Project. It would be awesome if the website was flooded with other moms piping (commenting/sharing) in about their experiences and […]

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