Our New Normal [s] » Our little family's realization, that there is no normal

Tag Archives: dermatomyositis

Trip to Holland

I didn’t write this, but I had to share because I have never come across something that describes our experience better than this. In case you were wondering… it’s short, and lovely. “I am often asked to describe the experience of raising a child with a disability – to try to help people who have […]

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Last Week.

I was in a bit of shock. This week, I am “full steam ahead”. I am so angry~ Here’s a little background: Over a year ago, I took Vivia to the doctor because she had a nasty looking rash on her face that would not go away. We took her in, and the doc diagnosed […]

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