Our New Normal [s] » Our little family's realization, that there is no normal

Tag Archives: microphthalmia

Trip to Holland

I didn’t write this, but I had to share because I have never come across something that describes our experience better than this. In case you were wondering… it’s short, and lovely. “I am often asked to describe the experience of raising a child with a disability – to try to help people who have […]

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Rio’s Story pt. 3

This is not  . Or doctored. This is Rio, 2 hours into wearing his new “diggs”. He recieved his Scaleral Shell aka. (Prosthetic Eye) today. I am still trying to figure out how I feel about seeing my son like this. I need a little time to process it. He’s gorgeous. As he was before. […]

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My New Normal… a trip to the Ocularist

When my son was diagnosed with Microphthalmia, I felt my world come crashing down,  fear and grief flooded in. I was exposed. My prior feelings of invincibility forever washed away by one word I had never heard before, but would grow to know all too well.  Micro meaning little, ophthalmos meaning eye. “Little Eye.” What is […]

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